Just venting again (sigh.)

Just venting. Sigh. Sjogren's Syndrome + Hashimoto's Thyroiditis + Dysautonomia/Autonomic Nerve Damage + Bipolar Disorder II + Interstitial Cystitis + IBS / SIBO + Histamine Intolerance / possible Mast Cell Activation Syndrome + Structural body damages + who knows what else = pretty hard to bear sometimes. Acute insomnia 2 nights in a row (Bipolar … Continue reading Just venting again (sigh.) →

Sjogren’s Products

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Hunkering down

I feel a need to try to describe what this social distancing/flattening the curve period of time due to the coronavirus/Covid-19 issue is like for me as a sufferer of chronic long-term illness. I wonder if any others in this boat have experienced hunkering down at home in the same way. I'd like to hear … Continue reading Hunkering down →

Morning Vent for the Suffering

I wish I could describe what mornings are like for me when My body/brain tries to wake up. The brain: high pitched noise, can't think or function much, dizzy, groggy, can't come out of the sleep. The body-stiff, slow moving, pain in various areas. It feels like trying to resurrect from the dead, but without … Continue reading Morning Vent for the Suffering →

Need motivation?

I am so convicted. I’m reading The NIV Application Commentary on Revelation by Craig S. Keener (Zondervan 2000) as part of my personal Bible studies/devotions and everything quoted in this post is from that book/author. Besides learning a whole new better way of looking at interpreting Revelation and apocalyptic/prophetic books generally, I am receiving such … Continue reading Need motivation? →

Tears

Today I had the privilege of attending my Bible Study Fellowship class in person and receiving the lecture after the discussion group live. (It is a wonderful and rare thing for me to feel well and able in the morning.) Despite feeling fidgety and not wanting to sit inside on a rare sunny day (in … Continue reading Tears →

Roller Coaster Ride

April is Sjogren's Syndrome awareness month. I've been thinking and praying about how much to involve myself with promoting awareness of Sjogren's and generally for all invisible and little understood diseases. I guess I'm writing this to provide a snapshot of some of what life is like with Sjogren's Syndrome, autonomic nerve failure and other … Continue reading Roller Coaster Ride →