Category: Dysautonomia

Just venting again (sigh.)

Just venting. Sigh. Sjogren's Syndrome + Hashimoto's Thyroiditis + Dysautonomia/Autonomic Nerve Damage + Bipolar Disorder II + Interstitial Cystitis + IBS / SIBO + Histamine Intolerance / possible Mast Cell Activation Syndrome + Structural body damages + who knows what else = pretty hard to bear sometimes. Acute insomnia 2 nights in a row (Bipolar … Continue reading Just venting again (sigh.) →

Good Friday Music and Musings

As some of my friends know, I play at playing and studying piano music. I also teach piano students how to play piano and read and interpret music, on a small scale. I've never in my life really had the opportunity to properly study music or piano, but I've done a lot, by God's grace, … Continue reading Good Friday Music and Musings →

Hunkering down

I feel a need to try to describe what this social distancing/flattening the curve period of time due to the coronavirus/Covid-19 issue is like for me as a sufferer of chronic long-term illness. I wonder if any others in this boat have experienced hunkering down at home in the same way.  I'd like to hear … Continue reading Hunkering down →

Morning Vent for the Suffering

I wish I could describe what mornings are like for me when My body/brain tries to wake up. The brain: high pitched noise, can't think or function much, dizzy, groggy, can't come out of the sleep. The body-stiff, slow moving, pain in various areas. It feels like trying to resurrect from the dead, but without … Continue reading Morning Vent for the Suffering →

A strange metaphor

I'm blessed to be retired from my job, usually with long mornings when I'm not feeling too chipper from Sjogren's Syndrome and autonomic nerve damage (dizziness, orthostatic hypotension)--resulting in the blessing of time at my computer and desk to do Bible study and prayer time. I'm presently studying the Old Testament prophecy books of Ezekiel … Continue reading A strange metaphor →

Roller Coaster Ride

April is Sjogren's Syndrome awareness month.  I've been thinking and praying about how much to involve myself with promoting awareness of Sjogren's and generally for all invisible and little understood diseases.  I guess I'm writing this to provide a snapshot of some of what life is like with Sjogren's Syndrome, autonomic nerve failure and other … Continue reading Roller Coaster Ride →